Patient and Public Involvement and Engagement in Pediatric Health Research: A Systematic Review.
Veronika Stadler, Rebeca Mozun, Jannik Strohm et al.
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In 30 seconds
This systematic review examined patient and public involvement and engagement (PPIE) in pediatric health research, analyzing 37 studies. It found that PPIE participants, primarily children and caregivers, were most involved in study design (89%) and recruitment (51%). The review highlights the benefits of PPIE, including improved recruitment and retention rates.
Key findings
- PPIE participants were involved in all research stages, especially in study design (89%) and recruitment (51%).
- Key benefits of PPIE included enhanced recruitment and retention rates for studies.
- Barriers to PPIE included financial and time resources, as well as challenges in recruiting representative participants.
- PPIE reporting quality varied significantly across the included studies.
Why it matters
Understanding the role of PPIE in pediatric research can enhance the relevance and efficiency of studies, ultimately leading to better health outcomes for children. Improved engagement strategies can foster more effective collaborations between researchers and the communities they serve.