The SAVOIR study: protocol for the development and validation of a PAH knowledge questionnaire.
Ilma Nascimento, Gabriella Gomes Carvalho, Nathalia Zorze Rossetto et al.
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In 30 seconds
The SAVOIR study is a methodological clinical trial aimed at developing and validating a questionnaire to assess disease knowledge in patients with pulmonary arterial hypertension (PAH), particularly in Portuguese-speaking populations. The study will involve approximately 200 patients and follow a structured four-phase process. The expected outcome is a standardized tool to enhance patient education and engagement in PAH management.
Key findings
- The study will assess knowledge across domains including disease concepts, symptoms, and treatment.
- Measurement properties will include content validity, internal consistency, and test-retest reliability.
- The instrument aims to identify knowledge gaps to improve patient engagement and treatment adherence.
Why it matters
Understanding disease knowledge in PAH patients is crucial for enhancing treatment adherence and clinical outcomes. A validated questionnaire can help identify educational needs, ultimately leading to better patient management and engagement.