A Convergent Mixed-methods Study of the User Perspectives for an Individualized, Computerized, Collaboratively Produced, Evidence-based Patient Self-administered Systemic Lupus Erythematosus Decision Aid.

In 30 seconds

This multicenter mixed-methods study evaluated patient feedback on a computerized decision aid for systemic lupus erythematosus (SLE) across 15 US rheumatology clinics from 2019 to 2023. Among 1895 patients, 78% to 92% rated the information quality as good to excellent, indicating high acceptability and usefulness in therapy decision-making.

Key findings

• 78% to 92% of patients rated the information quality of the SLE PtDA as good to excellent.
• 82% of participants felt the amount of information was just right.
• 90% found the SLE PtDA useful for making therapy decisions.
• 82% reported that the presentation of data was balanced.

Why it matters

Understanding patient perspectives on decision aids can enhance their design and effectiveness, ultimately improving patient engagement and satisfaction in managing chronic conditions like SLE.